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The cost has nothing to do with the cost of sequencing DNA. DMD is extremely rare and expensive. The gene therapy itself is very cheap. The cost of the drug is entirely due to the value it provides.

The company is already talking about upping the price to $12 million.



To be fair, research isn't free. If the total addressable population of sick people is very tiny, then the fee needs to be enormous for each person. I am OK with some kind of rich gov't programme to negotiate and pay this fee. After R&D is paid for, plus some handsome profit, the fees can drop and we can export to developing countries.


I'm not criticizing the cost at all. It's a deadly disease that ravages people's bodies and over a lifetime costs tens of millions. Even $12 million seems fair.

Just pointing out that genetics getting cheaper has no effect here.




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